tag:blogger.com,1999:blog-2694822185932524193.post768871475926289187..comments2023-12-27T06:31:50.532-05:00Comments on Health Management Rx: That's Right: Your Hospital's EHR Provider May Make $ Selling YOUR Health DataJen S McCabehttp://www.blogger.com/profile/12280837167883024960noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2694822185932524193.post-82820335334508675222009-10-20T07:42:34.736-04:002009-10-20T07:42:34.736-04:00Oh god thats horrible cant we sue themOh god thats horrible cant we sue themUnknownhttps://www.blogger.com/profile/13833349073703526334noreply@blogger.comtag:blogger.com,1999:blog-2694822185932524193.post-63708306119880190702009-10-19T15:14:55.080-04:002009-10-19T15:14:55.080-04:00Look at EHR managers/providers as a publisher of d...Look at EHR managers/providers as a publisher of data, and the publisher's library. The provider takes in your data, formats it, stores it, and makes it available. Like most scientific publishers, most of its income is not publication costs billed to the author, but sales of the printed (or electronically-hosted) book.<br /><br />In the current configuration, publishers gain additional income -- and users, additional value -- through reorganizing and repurposing the data. This could be republishing a photograph or graph, or recompiling papers into different collections of interest to specific audiences. This income is increasingly presumed by the publisher (indeed, the contracts of publication often require the authors to cede to the publisher all rights of recombination and republication to other formats as a condition of initial publication). <br /><br />Why there's no market reason you should not be able to profit monetarily from your identifiable health data, there are definitely -- not arguably, but definitely -- some applications that require large numbers of data points from specific populations. The only place researchers can get this information without excessive time and expense, and/or running afoul of ethical-research considerations, is to license the data from a large databank -- a publisher of medical data. This is, in its essence, the real strength of integrated, standardized EHRs.<br /><br />The financial model that I expect to develop is that of an EHR that is free, or near free, to patients (or covered within your medical insurance payments), but only allows you to see your own data; covers providers' patient-record access fees (a higher rate per record) through the patient's medical insurance (or added to the provider's itemized bill), and supported primarily through aggregate-data requests (cleaned data) from researchers (medical, sociological, pharmaceutical, etc.) at a higher price rate yet. In order to participate, you would need to sign a release allowing the EHR provider/health database the right to redistribute non-individually-identifiable information the same way Google and other web sites sell aggregate visitor data.Brenda Bellhttps://www.blogger.com/profile/05687718956610704894noreply@blogger.com